Help and support Support for children and young people When your child is diagnosed with chronic kidney disease, it can be very difficult to process. You might feel the need to scour the internet for information, but it might not be what you are looking for. At the NKF, all of our information has been written and reviewed by respected nephrologists. Feel free to view and download any of the booklets on our site, which will help your child on their renal journey. We run the only free UK Helpline dedicated to kidney patients, with two full trained, experienced advisers providing a 5 day per week service to kidney patients, carers and healthcare professionals and renal units. The NKF Helpline is open from 9am until 5pm Monday to Friday on 0800 169 09 36. Useful links EMEESY is the children's renal and urology network for South Yorkshire, the East Midlands and the East of England. Their main specialist service is at Nottingham Children's Hospital but they have established links with consultant paediatricians and shared care clinics in local hospitals throughout the region. EMEESY has an area on their website for parents and carers. Use the below links to navigate to the six sections in that area. Help, my child has kidney disease! How you might feel Support from family and friends Coming to hospital Money issues Benefits www.emeesykidney.nhs.uk infoKID is an online information resource for parents and carers about kidney conditions in infants, children and young people. Useful infoKID links Dialysis - Dialysis uses special equipment or a machine to do what a healthy kidney does - remove waste products and excess water from the body. Haemodialysis - Haemodialysis (HD) is the most common type of dialysis. HD cleans the blood during kidney failure using a machine. Peritoneal dialysis - Peritoneal dialysis (PD) is one of the two types of dialysis. PD cleans the blood during kidney failure, using the lining of the abdomen. Fistula - A fistula joins an artery and a vein to form a larger, stronger blood vessel. Kidney transplant - A kidney transplant is a major treatment for children with kidney failure. A donor's healthy kidney is transplanted into the body. Deceased donor - A deceased donor is someone who has recently died and whose healthy kidney is quickly removed to be transplanted. Living donor - A living donor is someone who donates one of his or her healthy kidneys. www.infokid.org.uk Contact support families with the best possible guidance and information. They bring families together to support each other. They help families to campaign, volunteer and fundraise to improve life for themselves and others. https://contact.org.uk Looking after your kidneys Video produced by Sheffield Children's Hospital. We would like to thank EMEESY for permission to use the above two videos. Grown-ups with Kidney Failure: A Guide for Children by Cathy Holman