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Organ Donation Summit 2023



Introduction
The Organ Donation Summit event marked an important milestone in the efforts to increase organ donation rates and save more lives. The change of law introduced three years ago, involves an opt-out system which has resulted in a significant increase in the number of organ donors and transplants. The anniversary provided key organisations within the organ donation and transplantation community to come together to reflect on the changes and how we can go forward with further improvements and raise further awareness about the importance of organ donation.

Recommendations
Six recommendations emerging from the Summit are set out below.

1. For the Secretary of State for Health and Social Care
To urgently develop and publish the Implementation Plan for the “Honouring the gift of donation: utilising organs for transplant” report, given that its implementation must be cost neutral.

2. For the Mayor of London 
To mark Organ Donation week in September 2023 by using his communication channels to promote organ donation to Londoners.

3. For Leaders of London Councils
To promote organ donation within the boroughs during Organ Donation Week in September 2023 and to consider the approach taken by Brent and Harrow Councils.

4. For NHS Blood and Transplant (NHSBT)   
To work in partnership with the NKF, NBTA, JHOD and the London Specialist Nurses Team to produce a Guidance Pack to support London boroughs in promoting organ donation locally during Organ Donation Week in September 2023.  

5. For NHSBT 
To consider the findings of the impact of the change in law to opt out in England presented at the Summit and to implement recommendations of the final report due in Autumn 2023 from the London School of Hygiene and Tropical Medicine.

6. For NKF, NBTA and JHOD
To highlight the outcomes from the Summit and to encourage Kidney Patients Associations, Organ Donation Committees, the London Kidney Network and ethnic minority community groups in London to take on leadership roles to increase awareness about organ donation and help reduce inequality of provision.

Summit agenda and speaker profiles
Summit agenda –
Click here
Speaker profiles – Click here

Photos from event - Click here 

Presentation slides from guest speakers 
Latest statistics on organ donation and transplantation:
Rachel Johnson, Assistant Director, Statistics and Clinicial Research, NHSBT - Click here

Plans to increase kidney donation and transplantation in London:
Lisa Silas, Co-chair, Transplant Workstream, London Kidney Network - Click here 

Community action to address inequalities in provision:
(a) Orin Lewis OBE, Chair, NBTA and Chief Executive, ACLT - Click here
Videos from Orin's presentation:
Ace [45s ACLT cutdown] - https://youtu.be/EsfOamTdNzs

DJ ACE NAOMI BBC BREAKFAST - https://youtu.be/E7vtKc5edJA

ACLT - Living Kidney Donation 16x9 03 v1 - https://youtu.be/cyOS3_LRtho

ACLT - Living Kidney Donation 16x9 09 v1 - https://youtu.be/h3OOIVTfZP0


(b) Prafula Shah, Trustee & Secretary, Jain and Hindu Organ Donation Alliance - Click here

Increasing Organ donation Utilisation: 
Prof Sir Stephen Powis, Medical Director, NHSE - Click here 

Evaluation of the implementation of the Organ Donation (Deemed Consent) Act 2019: is the law change likely to make a difference to minority communities:
Dr Leah Mclaughlin, Bangor University and Dr Paul Boadu, London School of Hygiene and Tropical Medicine - Click here

Action taken by London boroughs:
(a) Brent: Cllr Neil Nerva, Cabinet member for Public Health and Adult Social Care - Click here
(b) Harrow: Cllr Pritesh Patel, Portfolio Holder for Adult Services and Public Health - Click here 

Experience of a donor family:
Jay/Sina Patel - Click here 

Published: 30th May, 2023

Updated: 31st May, 2023

Author: Sharney Warren

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