Home Dialysis Campaign CONTENTS: Home Dialysis Campaign Increasing Home Dialysis in the Context of Covid-19 in the UK - January 2021 Report Increasing Home Dialysis in the Context of Covid-19 in the UK One Year On - March 2022 Report How you can help with the campaign Covid patient information Home dialysis resource page Home Dialysis CampaignIn September 2020 the NKF hosted a webinar, discussing home dialysis during Covid-19. During the webinar, it was revealed that patients who dialysed at home were at a substantially lower risk of contracting and dying of Covid-19, compared to people who dialysed in a hospital. Dr Graham Lipkin, president of the Renal Association, highlighted the impact Covid-19 had had on dialysis patients and shared national findings on home dialysis from the draft Getting It Right First Time (GIRFT) report. There were also presentations from patients and carers, giving their view on home dialysis and its benefits. A national campaign to increase home dialysis in the UK is on going. In 2021 we produced a 28-page report which makes seven recommendations on how the NHS can increase home dialysis provision. The campaign will focus on the disproportionate impact Covid-19 has had on patients who dialyse in a centre. We have written to clinical leads of renal services and to all chairs of Kidney Patient Associations (KPAs) to request their support in encouraging more patients to dialyse at home. Data published by the UK Renal Registry, based on information up to 25th November 2020 in England, shows that 3,115 (15%) of in-centre haemodialysis (ICHD) patients were infected with Covid-19 and 3.1% died within 28 days of infection. In comparison, 5.3% of patients who dialysed at home in England became infected with Covid-19 and 1.3% died. This shows that patients who dialysed at home were able to protect themselves significantly better from Covid-19 compared to those who dialysed in a centre. Increasing Home Dialysis in the Context of Covid-19 in the UK - January 2021 Report Download a copy of the report Increasing Home Dialysis in the Context of Covid-19 in the UK One Year On - March 2022 Report One year on from our campaign report, we have published an updated report on the findings of our campaign titled Increasing Home Dialysis in the Context of COVID-19 in the UK – One Year On. Increasing Home Dialysis In The Context Of Covid-19 - One Year On Report, down load here Following the publication of this report we have received more data from the Renal Registry. The analysis shows the rate of home dialysis for patients on kidney replacement therapy at the end of 2020, across quintiles of deprivation. The quintiles are defined using the country-specific indices of multiple deprivation. Neighbourhoods within each country are ranked from most to least deprived based on the country-specific index. These ranks are used to group the neighbourhoods into quintiles separately for each country. Deprivation data were not available for patients treated at Scottish renal centres. Overall, the rate of home therapy was lower for patients from more deprived areas in England, Northern Ireland, and Wales. In England, 22.9% of patients in the least deprived areas (quintile 1) were on home therapies, compared to 15% was in the most deprived areas (quintile 5). The rate of home therapy for patients in Northern Ireland was 7.2% in least deprived areas while the rate was 9.8% most deprived areas. The rate of home therapy for patients in Wales was 26.5% in least deprived areas while the rate was 14.6% in most deprived areas. From the analysis, 33 centres achieved a HT rate of 20% for patients from the least deprived areas compared to only 8 centres for patients from the most deprived areas. For a more detailed look, please click the link ad82deprivation2020.xlsx UKKA Kidney week NKF mini symposium On Thursday 9th June 2022 the NKF was invited to give a talk at UK Kidney Week, this was chaired by the NKF vice chair Brian Child, it was presented by Kirit Modi MBE and Rosie Donne. The subject of the session was - 'How can all centres reach the 20% dialysis target.' If you missed it or would like to catch up, you can watch the recording of the session here: How you can help with the campaign We are asking our supporters to get involved with the campaign by writing to the clinical director of renal services at the NHS Trusts in their areas about the report, and offer the support of your KPA to promote home dialysis. If you are a member of a KPA, please share the report with other members and with your consultants. We have established a peer support service for home dialysis patients and carers for more details click here . This will give people who are about to start dialysis, or who are currently dialysing in-centre the opportunity to talk in confidence to patients and carers with first-hand experience of home dialysis. If you would like to join the peer support service, or can help in any way, or for more information, please contact us at [email protected] or on 01909 544 999. You can also write a letter to your local MP, urging them to raise this issue with the chief executives of the NHS Trusts in their constituencies. A template of the letter can be found here. Contacting your local MP is very quick and easy. You can write an email or letter to them at their constituency address. If you aren't sure who your MP is, you can find them by heading to the UK Parliament's website and entering your postcode. Covid Patient Information NEW PATIENT INFORMATION A Covid-19 Perspective on Home Dialysis Read here Home dialysis resource page More information on home dialysis can be found on our home dialysis resource page Home Dialysis Resource Centre | National Kidney Federation this includes details of the NKF Peer support service and a link to the NKF home dialysis survey. We would like to thank Fresenius Medical Care for their support with the webinar and report and for providing the images used in the banner on this page.