NKF Webinar series NKF Webinar Series Matching for Transplant - A guide to compatibility and blood tests This webinar took place on Tuesday 12th September, this time we teamed up with PKD charity, the speaker was Dr Judith Worthington - Principal Clinical Scientist How can a Kidney Patient Association (KPA) support you and why should you be a member This webinar took place on Wednesday, August 30th The webinar explained what local Kidney Patient Associations do, including helping one another, holding social events, getting closer links with your local hospital or how you can give something back. The presenters were David Coyle, NKF Chairman and Manchester Royal Infirmary KPA Officer, Fiona Broomhead, NKF Fundraising and Office Administrator, Lupinta Molina, Kent KPA’s NKF Representative and Sharon Orpen, Dudley KPA, KPA officer. If you did miss the webinar you can watch it by clicking the YouTube link below. Patients Know Best App This webinar took place on Wednesday 1st March 2023 via zoom. Patients Know Best (PKB) is a new social enterprise and technology platform. It’s designed to help health and social care providers bring together patient data, along with the patient’s own data and is a re-platform transition from the previous system that renal patients may be familiar with, PatientView. The new platform, Patients Know Best, creates one secure Personal Health Record (PHR) for the patient. It is the first PHR to integrate with the NHS App making it accessible to more people across the UK. Many renal patients now use this app since the transition from PatientView, but do you fully understand how the app works? The webinar was joined by the team behind Patients Know Best to discuss the PHR and it's integration within the NHS App. The presenters were ... Ron Cullen - Chief Executive, UK Kidney Association Retha Steenkamp - Medical Statistician at UK Renal Registry Darryl Nicholas - Patients Know Best Mohammad Al-Ubaydli - Patients Know Best To watch the webinar again please click the YouTube link below. On the evening of the webinar there was too many questions to get through, please click on the file to see questions and answers plus some updates. finalqasfornkfwebinar1.3.23.docx.pdf If you currently use PatientView (PV), your record will stop being updated with data during the early part of 2023. Kidney patients wanting to continue to access test results and communicate with their care teams need to join PKB. To ensure you continue to see your kidney data, from your unit when PV is switched off, make sure you register for your PKB record now by visiting https://patientsknowbest.com/renal/. Your existing data in PV will be ready to view in your PKB record. Your local kidney centre and UK Kidney Association control when your data can be seen in PKB. PKB shows the data as soon as we receive it. If there are any delays to your data showing up, then the UKKA has to check: Has the renal unit/kidney centre sent the data to the UKKA? Has UKKA sent the data to PKB? The UKKA are soon to release a new data dashboard, which will enable local kidney centres to sync the data themselves. Once this happens you will be able to go directly to your centre to resolve any delay/missing data. If you need any guidance during the sign up process, you can contact PKB here for additional support. Healthy eating with diabetes and kidney disease and looking forward to Christmas On Wednesday 8th December we were joined by Joanna Pulman, Kidney Dietitian to give us advice coming up to the festive period. Joanna was joined by two special guests, Stephen Miller who is a kidney patient and loves cooking and coming up with new recipes and Hattie Stiff, a young kidney patient with her views on food in a modern world as a kidney patient. After the presentation, there was a live Q&A session, to watch the webinar again please click the YouTube link below. An insight into Renal Pharmacy On Wednesday 28th September 2022, we were joined by Kathrine Parker MPharm MFRPSII MSc(dist) NMP. A highly specialist Renal Pharmacist- NIHR clinical doctoral fellow from Manchester University NHS Foundation Trust and Robert Brown Senior Specialist Pharmacist – Renal and Transplant at North Bristol NHS Trust. We looked at all aspects of medication for kidney patients and the role of the Renal Pharmacist. After the presentation, there was a live Q&A session, to watch the webinar again please click the YouTube link below. Webinar FeedbackThe NKF are always looking to improve their patient support services, with your help, could you please spare a few minutes to complete the following questionnaire with your feedback about the recent webinar, An Insight into Renal Pharmacy. Please find the following document as a word document or PDF to complete. Please return the document by emailing to [email protected]. If you would like further information regarding medication, please find the below NKF Helpline leaflets below: Blood pressure medication Commonly prescribed drugs for kidney failure Commonly taken drugs for kidney failure Over the counter drugs Kathrine Parker also joined us last year for our Annual Patients' Event discussing the role of a Kidney Pharmacist. To re-watch her presentation from the event, please click the YouTube link below. Previous NKF webinars to watch again Benefits for kidney patients webinar NBTA - OPT OUT IN ENGLAND – TWO YEARS AFTER WEBINAR Patient Choice - Vascular Access Keeping active with kidney disease webinar Help - I Need somebody, Help webinar Healthy Eating for your kidneys webinar If you have any questions for the speakers, please email - [email protected] Booking for this event has now closed.