NKF Annual Patients' Event 2024

Amy

Amy is an advanced specialist kidney pharmacist. She provides a clinical pharmacy service to the inpatient kidney wards and is involved with outpatient transplant clinics, provision of education and training and leads the in-house kidney home delivery services.

She also works as part of the Leicester, Leicestershire, and Rutland Chronic Kidney Disease Integrated Care Delivery (LUCID) programme aimed at delivering better kidney health for all in the ICS. She is a member of the Renal Pharmacy Group and is co-chair of their education and training sub-group.

Dr Arvind Nagra

Dr Nagra is a Paediatric Nephrologist at Southampton Children's Hospital and the founder of TIER. in  she is also the UK Kidney Association  Co-Chair   for Specialist Interest Group for Young People and the Quality Improvement lead for the British Association Paediatric Nephrology.

She is the driving force behind the Ready Steady Go and Ask 3 Questions Programmes and has worked tirelessly to develop the programmes to ensure that any child, young person and adult with a long term condition is given the best opportunity to take control of their own health and decisions as they move through the health system.

Jackie Brander

Qualifying with a Diploma of Higher Education in Nursing, Jackie commenced her nursing career in Renal Medicine and Transplantation. During this time caring for both acute and chronic renal patients, Jackie became acutely aware of the issues faced by renal patients and those awaiting an organ transplant.

Jackie is passionate about organ and tissue donation and transplantation, having both donor and recipient experience, maximising opportunities to benefit those patients waiting on the NHS Transplant waiting lists.

Dr Pelly Koufaki

For the last 20 years I have been actively conducting all aspects of people-based research and knowledge exchange activities, focusing on the development, implementation and evaluation of physical activity driven interventions.

The primary aim of my research is to optimise functional independence, quality of life and reduce cardiovascular health risks in people with chronic cardiometabolic conditions and associated frailty syndromes. My research and professional approach is by default multidisciplinary, as sustainability of physically active lifestyles for health benefits, is influenced by a range of diverse and interactive factors.

Erica & Zak Stanley

My introduction into the world of renal failure was from my Nan who was a dialysis patient for almost 20 years before she sadly passed away. Also through my amazing step son (I will refer to him as my son) Zac is 17 and he is autistic by the time the event will happen he will be 18. Zac got ecoli when he was 2 years old which unfortunately caused both of his kidneys to fail.

From all this experience I became so passionate about CKD and everything about as it’s the most underrated under promoted disease out there and I wanted to make as much difference as I possibly could to help others so I joined Southport kidney fund as a committee member and I am now grateful to be in the chairperson’s position and I look forward to the future and seeing how many patients we can help. 

Patricia Gooden

My name is Patricia, and I am a Peer Supporter for the NKF. I made a pledge many years ago, that I will never knowingly allow any other kidney patient to go through what I went through when I was diagnosed with chronic kidney disease (CKD). Just over a decade ago, there was hardly any education on kidney failure or dialysis and at times I was even given incorrect information!

My mantra is ‘no one knows a kidney patient like a kidney patient’. I understand what you are going through, I have been through dialysis, I have had the doubts… the worry… the fear. I do what I do to take away some of the anxieties you may have in the early stages of your diagnosis. Please use our Peer Support Service, we are here for you!

Sam Honeywell

Me, my kidneys and eyes is a journey through the challenges that I have faced in losing my vision while starting dialysis. I will explore the trials and tribulations that this has put on myself and my family, including my 2 young children. 

I am a blind dialysis patient who has faced many challenges but the hardest has been loosing my sight and starting dialysis within 4 weeks of each other.