National Peer Support 

In September 2020 the NKF hosted a webinar, discussing home dialysis during Covid-19. During the webinar, it was revealed that patients who dialysed at home were at a substantially lower risk of contracting and dying of Covid-19, compared to people who dialysed in a hospital.

The NKF has embarked on a national campaign to increase home dialysis in the UK. We have produced a 28-page report which makes seven recommendations on how the NHS can increase home dialysis provision. As part of the campaign we have introduced a peer support service. 

The NKF Peer Support Service is now open.

The free service is aimed to support people who:

  • Would like someone to talk to regarding the options of dialysis at home
  • Or have just started home dialysis and would like further support

Myth Busting Home Dialysis : Information from Baxter Heathcare Ltd Download this PDF


Our national service offers an opportunity to patients to have a one-to-one chat and share home dialysis queries, similar life experiences and lifestyle stories with trained peer supporters.

Patients can be matched with a peer supporter who have experienced home dialysis themselves or are a carer of someone on home dialysis.

Covering the whole of the UK, our peers are available to give support over the phone, through Zoom and at some stage face-to-face discussions.

These are some of our peer supporters ....

My name is Gill 

I carried out peritoneal dialysis at home before having a kidney transplant. The training given and on-going support was excellent and gave me the skills and confidence that I needed.

Most of the time I dialysed overnight attached to an APD (automated peritoneal dialysis) machine which gave me more freedom during the day.  If I wanted to go away for a couple of days I would dialyse during the day.  It just meant taking some bags of fluid with me and working the dialysis around my days’ activities.

 It was empowering to be in control of my own treatment in this way.


My name is Peggy and I've been helping my husband with haemodialysis at home for 7 years.


My name is Jenni, I was diagnosed with CKD in 1990 aged 20. I am currently doing in centre dialysis but have previous experience with Home Haemodialysis and Peritoneal Dialysis. I have 31 years expereince living with CKD. 


My name is Kasonde, I have been living with CKD for over 22 years, 7 years on home dialysis.


Hi I’m Caroline living in Northern Ireland. I have been a kidney patient for over 6 years, 2 years in unit / hospital dialysis and 4 years at home.


I’m Ali and I’ve been a kidney patient for 24 years.  I spent 18 months on peritoneal dialysis (both APD and CAPD) and am now on in-centre Haemodialysis.


Hi I’m Joyce and my son Blair is on home dialysis. I have been fully trained to help with his home dialysis. He has been a kidney patient for over 12 years. 


I am Chris, retired, living in Torquay with my wife, Jenny. Dialysis began in May 2020 and I moved to home haemodialysis in March 2021. I wish I’d been able to move sooner!


I am Joy, not a kidney patient but my husband has been on home dialysis. He had 1 year dialysis in the unit. After that, I trained and have since performed his dialysis at home for the past 5 years.


I am Ros and have supported my husband on PD and subsequently Home HD and also my brother who was on PD for the last 5 years of his life


I am Brian, I was 'Dialysis Nurse' for my wife for 14 years of home haemodialysis. Great responsibility, but very rewarding.

 


I am Tarsem: I was briefly dialysing at home, then in Clinic, I have had a 2nd Kidney Transplant 3 years ago. I am very passionate about supporting about kidney patients & their families.


My name is Jeff Wood. I had one year on hospital dialysis and 5 years home dialysis. I had a kidney transplant in Nov. 2021


My name is Jackie and I am currently a Home Haemo dialysis patient ( with the help of my lovely husband ) of five plus years on a NextStage machine.


I am Dana and I have been a kidney patient for 11 years with IGNa doing dialysis for 18 months with the last year spent doing on home HD. 


My name is John, I have been on haemodialysis for 3 years, 2 of them at home. It has  been very successful, the support from the home dialysis team has been a great support when needed.


If you would like someone to talk to and explore the options of dialysis at home, or have just started home dialysis and would like further support, the NKF Peer Support Service is now available.

For help or just some reassurance, you are very welcome to contact us via our NKF Helpline for more information on 0800 169 09 36 available from 9am to 5pm Monday to Friday.

This service is supported by