Childhood Nephrotic Syndrome - The Parent's Group
www.nephrotic-natter.org and www.nephrotic-natter.co.uk - An on-line resource for families and patients, providing an opportunity to share experiences, problems, and questions with others who are similarly affected.
Some hospitals have parents’ groups and some try to have an occasional parents’ evening during the year where parents can get together and discuss any worries. These are usually informal events and give an opportunity for everyone to share their experiences and common problems.
Even if there is no formal parents’ group, your doctor, nurse, or paediatric social worker should be able to help you contact another parent who has a child with Nephrotic Syndrome.
This booklet will not answer all your questions or give all the information you would like, so please ask questions as professionals are always willing to help.
Content compiled by members of the Children’s Renal & Urology Unit, QMC Campus, Nottingham University Hospitals.
The National Kidney Federation cannot accept responsibility for information provided. The above is for guidance only. Patients are advised to seek further information from their own doctor.