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                                                                                                Winter 2017 issue

                              Have you moved? Please remember
                               to let us know here at NKF HQ if
                                you have moved recently so that we
                               may update our records and ensure
                            your issue of Kidney Life is going to the
                            correct address.

             If you are reading this issue of Kidney Life and do not
              already receive your own free of charge Kidney Life
             magazine but would like to do so, please get in touch                            Page 21
                                                                              Page 11
              with us - address details below – and we will arrange
               for it to be delivered to you at your home address.
                                                               Page 6   Kernow CCG consults on charging patients
               Remember to give us your email address please!
                                                                        for their transport to unit based dialysis
                         Together we CAN.
                                                               Page 8   NKF Annual Patients’ Conference 2017 report
            Welcome to the winter issue of Kidney Life.  This is our first   Page 10   Summit to address fall in living donor kidney
            ever ‘digital only’ version of Kidney Life, produced to meet   transplants is announced
            the demand from you to receive four issues a year and
                                                               Page 12   Tony Brinn - my journey through kidney failure
            not the three you have been receiving over the past two
            years.  Please use the email we have sent you announcing   Page 21   Sidney Benjamin celebrates his 105th birthday
            its publication to forward Kidney Life to any colleagues with   with his dialysis nurses
            kidney disease so that they too may benefit from the up to
                                                               Page 23   Sign the petition to retain reciprocal dialysis
            date information Kidney Life provides.                      cover under the EHIC scheme, post Brexit
            It has been another busy 3 months since our last issue.
                                                                 NKF would like to thank the following for their
            Amongst the most important news is: the announcement of
                                                                 continued sponsorship of Kidney Life:
            a date in November for our first ever Living Kidney Donor
            Summit, the completion of another successful NKF Annual   Abbvie   Baxter    Mologic    Renal Services
            Patients’ Conference, news of new campaigns in which NKF   Amgen  Chiesi     Novartis   Sandoz
                                                                 Astellas    Fresenius   NXStage    Sanofi
            is challenging potentially life threatening commissioning
                                                                 B Braun Avitum  Kimal   Quanta
            policy on our behalf, and the recent Government
            announcement of a national consultation on moving from
            an opt-in system of organ donation in England to one of   NKF Officers
            presumed consent.                                    Chairman      David Marshall   SAKA
                                                                 Treasurer     Michael (Bud) Abbott   Glocestershire KPA
            If you would like to contribute to the spring 2018 issue of
                                                                 Secretary       Tracey Sinclair       Wessex KPA
            Kidney Life we would love to hear from you.  Submissions
                                                                 Chief Executive   Timothy Statham OBE
            should be with us by no later than the end of December 2017.  President   Ken Tupling
            All of us here at NKF hope you enjoy the Christmas festivities   Patrons   Lawrence Keogh and Nina Wadia
                                                                 NKF Officers and Executive members do usually belong to a KPA, but
            and wish you a happy and healthy 2018!
                                                                 offer their services to NKF as individuals.  As such NKF recognizes that
                                                                 views expressed by its Officers and Executive members are expressed
            Editor - Deborah Duval                               as individuals and do not necessarily represent the views of their KPA.
            Assistant Editor – Sue Lyon

              KIDNEY PATIENTS UK           KIDNEY PATIENTS UK                       KIDNEY PATIENTS UK
             Registered Office:
                                           Our Helpline is free of charge to call on 0800 169 09 36  If you want to raise funds for the NKF, plan
             The Point, Coach Road, Shireoaks,
                                           The NKF runs the only UK Helpline dedicated to kidney patients,   an event, make a donation to the NKF
             Worksop, Nottinghamshire S81 8BW
                                           with over 200 unique and regularly updated information leaflets   or discuss leaving a legacy to the NKF
             T: 01909 544999  F: 01909 481723
                                           and  two  fully  trained,  experienced  advisers  providing  a  5   please contact Pete Revell (NKF Head of
             e:          day a week service to kidney patients, carers and healthcare   Fundraising).
             Charity No. 1106735           professionals.                            T: 01263 722287
             Co. No. 5272349 reg. in Eng. & Wales  The  NKF  Helpline  is  open  from  9am  until  5pm  Monday  to
             Give as You Earn contribution No. CAF.GY511  Friday on 0800 169 09 36     e:  e:
                                           If you require a larger print or audio version of the issue, these are available by contacting the
                    NKF Helpline on 0800 169 09 36
                                                              HELPLINE  0800 169 09 36   Winter  2017   3
            HELPLINE 0800 169 09 36                                        Calls to the NKF Helpline
                                                                           are free of charge
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