UK National Kidney Federation - Surveys Zone

Tell the NKF (surveys)

If you have had a Kidney Transplant, the National Kidney Federation in conjunction/collaboration with one of our sponsors Astellas Pharma Ltd would very much like you to complete this survey form (anonymously) and return it to us electronically by clicking the submit button at the end.

Please do not complete this survey if you have not had a Transplant.

Please skip past questions you would prefer not to answer.

1. Have you ever had an organ transplant?

Yes

If you marked No please go to question 11.

2. Which organ(s) has been transplanted?

Liver

Kidney

Pancreas

Heart

Lung

Other

3. Please give the approximate date of your transplant:

In the last year

In the last 5 years

In the last 10 years

In the last 20 years

4. Which if any, of the following anti-rejection (immunosuppressant) medications do you take? Tick as many as appropriate:

ADVAGRAF® (Tacrolimus Prolonged release)

Prograf® (Tacrolimus immediate release)

Neoral®(Ciclosporin)

Sandimmune® (Ciclosporin)

Cellcept® (Mycophenolate mofetil)

Myfortic® (Mycophenolic acid)

Rapamune®(Sirolimus)

Azathioprine

Prednisolone

5. How often, in general, do you see your transplant specialist for a check up?

3 monthl

6 monthly

Yearly

Less frequent than yearly

6. Who generally gives you your prescription for your anti-rejection medication?

Hospital—Consultant or Nurse

My medicine gets delivered to my home

Other

7. Do you check that you have been given the right anti-rejection medication(s) by the pharmacist when you collect/receive your medicine(s)?

Always

Mostly

Sometimes

Rarely

Never

8. If, when you went to collect your anti-rejection medicine, you were given an alternative version or form of your usual medicine without any prior discussion with your doctor, what would you do?

I probably wouldn’t notice

I would trust the pharmacist that they were giving me a suitable alternative

I would feel uneasy and ask the pharmacist why they were giving me something different

I would ask the pharmacist to give my usual instead of the alternative but if they couldn’t I would take the alternative

I would ask the pharmacist to give me my usual instead of the alternative but if they couldn’t I would not take it until I had discussed it with my transplant specialist or transplant nurse

Other

As you may know, prescription medications are patent protected for a certain period of time, but then can be copied by other manufacturers called generic manufacturers. A generic medicine must contain the same active ingredients as the original medicine and undergo tests to ensure it is within an acceptable range for safety, purity and effectiveness as the original brand medication.

9. If, when you went to collect your anti-rejection medicine, you were given a generic alternative to your usual medicine without any prior discussion with your doctor, how would you feel/what would you do?

I probably wouldn’t notice

I would trust the pharmacist that they were giving me a suitable alternative

I would feel uneasy and ask the pharmacist why they were giving me something different

I would ask the pharmacist to give me my usual instead of the generic alternative but if they couldn’t I would take the generic

I would ask the pharmacist to give me my usual instead of the generic alternative but if they couldn’t I would not take it until I had discussed it with my doctor

Other

10. Would you go to a particular pharmacy if you knew they could guarantee you always got your familiar brand of anti rejection medication, even if a generic alternative was available?

Yes

To be Completed by Every Respondent:

11. Are you a resident of the United Kingdom?	Yes No

If you marked No please go to question 13

12. Geographical region:

13. E-mail address:	(to be used for verification purposes only. This will not be passed to any third party.)

If you wish, print out this Survey for your own records – then PRESS “Send Answers”.

Thank you for taking the time to complete this survey – when you are ready press the “Send Answers” button below. If you do not press “Send Answers” then your answers will not reach the NKF.

Thank you for taking part in this survey.

The original construction of this survey zone was supported by a grant from AMGEN – thank you.

Ongoing use, and content of the zone remains under the sole control of the NKF.

new NKF logo The National Kidney Federation is registered in England and Wales as a Company limited by guarantee (Company No 5272349) and awarded charitable status (Charity Number 1106735). Give as You Earn contributions No. CAF GY511.

Registered Office:- The Point, Coach Road, Shireoaks, Worksop, Notts S81 8BW, Tel: (01909) 544999, Fax: (01909) 481723, Helpline: (0845) 601 02 09, E-mail: NKF on facebook Fundraising on Follow us on twitter

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Page created: 21 May 2010

Last updated: 27 February 2011

Tell the NKF:What would you do? — Changes to Your Transplant Medication

To be Completed by Every Respondent:

Tell the NKF:
What would you do? — Changes to Your Transplant Medication