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The NKF — Its Future Direction Online Survey

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If you are a renal patient (CKD, pre-dialysis, Dialysis or Transplanted) or a carer of a renal patient, then the NKF would like you to complete this survey – anonymously.

When the results have been analysed the NKF will pass the results to the NKF Executive Committee for their information and possible action.

Please phone the NKF Helpline (number at the foot of the page) should this survey give rise to any concern.

This survey is confidential – you do not have to identify yourself.

There is no closing date for this survey.

Your views and opinions will be very helpful in shaping future NKF decisions.

Thank you – NKF.

Please skip past questions you would prefer not to answer.

1. Are you:
A member of a United Kingdom Kidney Patient Association (KPA)
A Friend of the NKF (pay a subscription directly to the NKF)
None of these
2. Do you receive Kidney Life posted to your home free of charge?
Yes
No
3. Have you ever been, or are you now, an officer or committee member of :
The NKF
A KPA
No – I have never been an officer or committee member of either

If you marked The NKF or A KPA please go to question 5.

4. If you answered “No”, have you ever thought about being an Officer of the NKF or a member of its Executive Committee?
Yes – I have considered this
No – I have not considered this
5. Are you:
CKD
Pre-Dialysis
On Dialysis
Transplanted
A carer
Other
6. Do you consider the NKF should be campaigning for improvements to renal services and treatment?
Yes
No
7. Do you believe the NKF should provide National Support services to patients and carers?
Yes
No
8. Which of these groups do you believe the NKF should represent as its primary function as a kidney patient charity? Select as many as you feel are appropriate:
CKD (stage 1)
CKD (stage 2)
CKD (stage 3)
CKD (stage 4)
CKD (stage 5)
Pre-Dialysis
Dialysis
Transplanted
Carer
Sufferers from Kidney Cancer
Other Kidney Disorders (major)
Other Kidney Disorders (minor)
9. Given the rise in patient numbers (6.5% per annum), is the NKF presently:
About the right size
Too small
Too large
10. Which of these statements would you agree with?
The NKF needs to grow in accordance to the number of patients
The NKF should remain its present size
The NKF should be a smaller charity

The NKF is a Federation made up of about 70 smaller Kidney Patient Charities, many of whom seek money from the public. The NKF does not currently seek financial support from the public.

11. Should the NKF:
Seek financial support from the public
Not seek financial support from the Public
12. Have you considered:
Making a Donation to the NKF
Sponsoring the NKF
Leaving a Legacy to the NKF
None of these
13. Do you believe the NKF should employ a professional fundraiser?
Yes
No
14. Do you believe the NKF should employ more Advocacy Officers? (Currently there is one full time and 2 part time):
Yes
No
15. Which NKF service(s) have you used?
The NKF Helpline
NKF Medical Information Leaflets
NKF Advocacy
NKF website (www.kidney.org.uk)
NKF Young Persons Group
Any advertisement within Kidney Life magazine
I have contributed to Kidney Life Magazine (letter or article)
I have purchased NKF Christmas Cards
I have attended the NKF National Annual Conference
I have displayed an NKF car sticker or poster or arranged a display of either
16. Which of the following bodies should the NKF be trying to influence?
The Public
UK Government
European Government
Department of Health (D of H)
National Health Service (NHS)
Hospitals
Renal Units
Satellites
Renal Commissioning Bodies
Other charities with renal synergies
Pharmaceutical Companies
Renal Industries
17. Do you consider that the All Party Parliamentary Kidney Group (APPKG) of 175 Members of Parliament is helpful to renal patients?
Yes
No
18. Are you aware that the NKF established this group and services the group on a day to day basis:
Yes
No
19. Are you aware that the NKF and APPKG jointly published two documents “A Transplant Manifesto” and “A Dialysis Manifesto” both of which argued for changes?
Yes
No
20. Do you consider that these publications have been helpful to renal patients?
Yes
No
21. Do you think the NKF should take part in World Kidney Day every year?
Yes
No

To be Completed by Every Respondent:

22. Are you a resident of the United Kingdom? Yes
No

If you marked No please go to question 24

23. Geographical region:
24. E-mail address: (to be used for verification purposes only. This will not be passed to any third party.)

If you wish, print out this Survey for your own records – then PRESS “Send Answers”.

Thank you for taking the time to complete this survey – when you are ready press the “Send Answers” button below. If you do not press “Send Answers” then your answers will not reach the NKF.

Thank you for taking part in this survey.

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The original construction of this survey zone was supported by a grant from AMGEN – thank you.

Ongoing use, and content of the zone remains under the sole control of the NKF.

new NKF logoThe National Kidney Federation is registered in England and Wales as a Company limited by guarantee (Company No 5272349) and awarded charitable status (Charity Number 1106735). Give as You Earn contributions No. CAF GY511.

Registered Office:- The Point, Coach Road, Shireoaks, Worksop, Notts S81 8BW, Tel: (01909) 544999, Fax: (01909) 481723, Helpline: (0845) 601 02 09, E-mail: click here to E-mail Follow us on twitter

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Page created: 19 December 2008

Last updated: 29 April 2009