National Kidney Federation (NKF) - Links page

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Information for patients and carers
UK Renal Unit websites
Organisations (kidney)
Organisations (other)
NKF Sponsors

This page was last updated on 28 September 2012 (see link(s) marked NEW)

Information for patients and carers

Atlas of Variation in Healthcare for People with Kidney Disease (UK) - (added 14 June 2012)
BBC News - Health (UK)
BBC - Health -Conditions -Kidneys (UK) - (added 21^st December 2009
Better Health (UK Race Equality Foundation) - (added 10 March 2012)
British Medical Journal (UK)
Carer’s Week (UK)
Carers UK - (added 11 January 2004)
Caring about Carers (UK Dept. of Health) - (added 22 January 2004)
Charity Commissions newsletter website - (added 6 January 2004)
Chronic kidney disease — National clinical guideline for the early identification and management of adults in primary and secondary care - (added 29 September 2008)
Contact a Family (re Children’s Kidney Disease) (UK) - (added 26 June 2005)
Dialysis Centre Map (NHS - England) - (added 4 November 2011)
Dialysis Diaries (UK) - (added 17 June 2011)
Dialysis Options (UK) - (added 13 July 2009)
Dr Foster Consultant Guide
EQUIP — Electronic Quality Information for the Public — NHS gateway to quality health and social care information for the West Midlands public - (added 15 April 2009)
ERBP — European Renal Best Practice information for patients - (added 18 April 2012)
Focus on: Preparing for End Stage Renal Disease (NHS Institute for Innovation and Improvement - UK) - (added 17 March 2008)
Focus on Fabry (UK) - (added 3 March 2008)
Home Dialysis Central (USA) - (added 26 June 2005)
iKidney.com (USA)
Kidney Cancer UK (UK)
Kidney Patient Guide (UK)
Kidney School (USA) - (added 26 June 2005)
Kidney Stone Treatment (USA) - (added 10 July 2005)
Life on the Waiting List — Fortnightly Guardian column by James Hipwell (UK) - (added 2 July 2010)
Life Options (USA) - (added 26 June 2005)
Medi-Tag (UK) - (added 18 September 2004)
MyKidney (UK
My Tacrolimus (UK) - (added 5 October 2011)
National Institute of Diabetes and Digestive and Kidney Disease (USA)
National Kidney Foundation (USA)
including the NKF Kidney Disease Outcomes Quality Initiative (NKF-K/DOQI™) Guidelines
Nephronline (UK)
NHS Choices (UK) - (added 14 September 2010)
- Autosomal Dominant Polycystic Kidney Disease
- Autosomal Recessive Polycystic Kidney Disease
- Carers Direct - (added 8 March 2011)
NHS Direct (UK)
NHS - Health and Social Care Information Centre (UK) - (added 10 July 2005)
NHS - Kidney Care (UK) - (added 12 August 2010)
NHS - Kidney Care Matters (UK) - (added 12 August 2010)
NHS - National Library for Health - Kidney Diseases Specialist Library (UK) - (added 10 March 2007)
NHS/ODTD - How to become a Donor Net (UK)
NHS - Renal National service Framework (Parts 1 and 2) - (added 2 July 2005)
NHS - Saving Lives, Valuing Donors - A Transplant Framework for England (UK) - (added 27 July 2003)
NICE — National Institute for Clinical Excellence (UK)
- Information (Feb 06) on improving outcomes for people with Skin Tumours - (added 20 February 2007)
- CKD overview (on NICE Pathways website) - (added 25 April 2012)
Nocturnal Haemodialysis (Australia) - (added 19 June 2004)
Patient reporting of suspected adverse drug reactions (UK) - (added 24 September 2009)
Polycystic Kidney Disease (PKD) Charity (UK) - (added 17 July 2004)
Prescription Medicines Code of Practice Authority (PMCPA) (UK) - (added 30 June 2008)
PubMed (USA)
RenalInfo (formerly Kidneywise) (UK/World) - (added 26 June 2005)
RenalNet (USA)
Renal Medicine — Patient Information (UK) - (added 9 May 2012)
Renal Registry (UK)
Renal Tsar’s Blog (UK) - (added 5 November 2007)
Renal Units in Scotland (Scottish Renal Registry, UK)
Surgerydoor (UK)
Sunsmart campaign against Skin Cancer (by Cancer Research UK) - (added 27 July 2003)
Talk Transplant (UK) - (added 3 August 2003)
The Nephron Information Center (USA)
Transplant Resource Directory (USA) - (added 26 June 2005)
Transplant Kids (UK) - (added 24 September 2004)
UK Self Help (UK)
UK Transplant Centres (UK)
UK Transplant Statistics (UK)
USDA Food Composition Database (USA)
Wall of Life (UK) - (added 15 July 2009)
Wilms @ Home (re Wilms Tumours) (UK) - (added 26 June 2005)

UK Renal Unit websites

Addenbrookes Hospital, Cambridge (UK) - (added 22 January 2004)
Edinburgh Royal Infirmary (UK)
Royal Cornwall Hospital Renal Units Patients & Carers website (UK)

Dialysis Freedom and the UK Dialysis Swap Scheme

Organisations (kidney)

American Society of Transplantation
aHUSUK (Atypical Haemolytic Uraemic Syndrome UK) - (added 27 October 2011)
British Kidney Patient Association (BKPA) (Updated Web Address 14 September 2004)
British Renal Society
British Transplantation Society - (added 15 July 2004)
Dialysis Freedom and the UK Dialysis Swap Scheme - (added 9 August 2010)
European Kidney Patients’ Federation (CEAPIR)
Give a Kidney — one’s enough (UK) - (added 4 November 2011)
International Federation of Kidney Foundations
Kidney Alliance (UK)
Kidney Dialysis Foundation, Singapore
Kidney Health Australia
Kidney Research UK (formerly National Kidney Research Fund) (UK)
Kidney Wales Foundation (UK) - (added 2 June 2004)
Kids Kidney Research (UK) - (added 14 June 2007)
Muslim Kidney Action Association (Singapore)
National Kidney Foundation (USA)
National Kidney Foundation Singapore
Nephrotic Syndrome Trust (UK) - (added 15 May 2008)
North East Kidney Patient Association (UK) - NEW - (added 11 July 2012)
Organ Donation and Transplantation Directorate of NHSBT
Renal Information Exchange Group (UK) - (added 11 November 2005)
Scottish Kidney Federation (UK) - (added 13 March 2007)
SW Thames Institute for Renal Research - (added 11 November 2005)
UCLA Healthcare - Transplantation Services (USA)
UK Xenotransplantation Interim Regulatory Authority (UK)
The Vascular Access Society of Britain and Ireland - (added 13 July 2010)
Transplants in mind (TIME) (UK) - (amended 21 March 2006)
World Kidney Fund (Singapore)

Organisations (other)

British Organ Donor Society (BODY) (UK)
British Medical Association (UK)
Centre for Sustainable Healthcare (UK) - NEW - (added 28 September 2012)
Cystinosis Foundation UK (UK)
DiabetesUK
Department of Health (UK) - (added 27 July 2003)
ESPRIT (Efficacy and Safety of PRescribing In Transplantation) (UK) - (added 22 November 2010)
Help Every Person C (Hepatitis C) (UK)
Human Genetics Commission (UK)
Human Tissue Authority (UK) - (added 24 April 2007)
I Hope You Know - (UK) (added 11 November 2009)
National Council for Palliative Care (UK) - (added 13 April 2006)
National Institute of Diabetes and Digestive and Kidney Disease (USA)
National Patient Safety Agency (UK)
Outsiders (UK) - (added 18 January 2008)
TTMed Urology - (added 20 November 2008)
Tuberous Sclerosis Association (UK) - (added 10 February 2009)

NKF Sponsors

The following companies support the work of the NKF and have web sites:

If you know of any other useful kidney disease related websites, please EMAIL the Webmaster with details (we would need to know your name, the name and address of the organisation and the website address). We are unable to accept Personal sites.

Warning: The UK National Kidney Federation hopes you find the above kidney related sites helpful, however, it cannot accept responsibility for any of the information provided nor does it necessarily endorse the views expressed on these sites. Patients are advised to seek specific information about their own health condition from their Doctor.