Some children’s centres have parents’ groups where you might find it useful to share your problems and questions with other parents whose children are similarly affected. Even if there is no formal parents’ group, your doctor or paediatric social worker should be able to help you contact another parent who has a child with nephrotic syndrome.
Some hospitals try to have an occasional parents evening during the year where parents can get together and discuss any worries. These are usually informal events and give an opportunity for everyone to share their experiences and common problems.
NKF Controlled Document No. 147, CHILDHOOD NEPHROTIC SYNDROME — A guide to the treatment of Childhood Nephrotic Syndrome — The Parent’s Group, written 10 September 2004.
Content compiled by members of the Children’s Renal & Urology Unit, QMC, Nottingham.
The National Kidney Federation cannot accept responsibility for information provided. The above is for guidance only. Patients are advised to seek further information from their own doctor.
Page created: 10 September 2004
Last updated: 6 August 2007
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