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If you wish to leave a general message for the NKF or for others about this website then this GUESTBOOK is the place to do it. However, if you want to exchange messages with other visitors to this site, perhaps about a medical matter, then TALKLINE (large button on the left) is a better part of this website to do that. Two different areas, for two different types of messages - check them both out!

WARNING TO CHILDREN USING THIS WEBSITE

The views expressed on these pages are those of the individual contributors and should not be construed as expressing the views of The National Kidney Federation.

Wise words, Michelle. No one knows your body like yourself. I to, were told as a teenagers that i would need a transplant by the time im 40, depending on how i look after myself. 3 children later and over 40, i am only know near end stage looking to have dylisis in the very near future. Enjoy your life while you can and worry what happens when the time comes. Be happy :-)
margaret
Cardiff, S. Wales UK - Thursday, 10 July 2008 at 11:09:16 (BST)

Hello, i've had kidney problems since birth, and was told that I would need transplants by the age of 21. I'm now 33, I have just had a little boy, and though I'm only 3points off being stage 4, I still have my own kidneys or what there is of them left lol. six months after getting married I was told I only had three to five years left due to hypertension caused by yep you guessed it my kidneys. I'm still here, yes I'm a bit tired etc but I'm still here I guess my moto is doctors don't know everything. take what they say with a pinch of salt, you know your body better than anyone else. I'm not encouraging a total disregard just to have faith in yourself.
Michelle Bates
UK - Wednesday, 02 July 2008 at 08:51:06 (BST)

Hello to you all

I think you are all extremely brave, Please, Please, stay positive.
I donated my kidney to ny husband in Feb this year and even though i have fully recovered my Husband Ian is recovering athough it seems a very long process i am sure we will get there and he will turn the corner and start a healthier life. We focus on the good signs daily and talk about the good and bad times and feelings. If any one would like to chat i am happy to talk and help you in any way.
Good luck to all of you awaiting transplant, believe me it will happen
Regards Oriel
ORIEL ANDERSON
SHROPSHIRE UK - Sunday, 29 June 2008 at 13:30:54 (BST)

i have hade a kidney transplant now for about 2and a harf years it is doing well before that i was on dillalis which was not brileant but it kept me alive i think more people should carry doner cards so they can save people lives like me and other people i find there is ashortage of kidney downers at preasent because people ither dont carry a doner card or they dont know about it
peter hardwick
weymouth, dorset UK - Friday, 13 June 2008 at 16:43:52 (BST)

i just looked on this site and you dont realise howm many people are going through the same as you till you see a site like this.ive had my transplant for just over 5 years now and its all up and down but being as strong as can be.Have had kidney pylonethritus since i was 7 now 30 with transplant .
deborah
barking, essex UK - Tuesday, 27 May 2008 at 22:33:48 (BST)

I have been reading the other comments and am struck by how positive people are which is wonderful to see. I was diagnosed with CKD3 last year. I have been struggling with how to get advice as my GP just said don't worry about it and eat healthily. I feel very much alone with this and am trying to 'eat healthily' but am not entirely sure what that means. I am also worried about buying any medications over the counter as I worry if this will cause further damage to my kidneys. I asked if I could see a dietician, as I need to lose a lot of weight, but again was told that at stage 3 it was not possible as in order to see a renal dietician you first have to see a consultant and this was not necessary at this stage. I want to do everything I can to slow down the process, if possible, so that stages 4 and 5 can be halted. I also said I was prepared to pay privately for a dietician, but no joy. I wonder if anyone else out there has had similar experiences or, if anyone out there, can help me get more knowledge and advice. I want to help myself but cannot seem to find the the help to do this. thank you Barbara Dunleavy, Nottingham
barbara dunleavy
Nottingham, Notts UK - Tuesday, 20 May 2008 at 13:11:43 (BST)

hi,everybody this is my first time using a pc;i am going to see surgen on fri.about a fistula,i have had very little info on this.i am on transplant list as drs says i need new kidney soon as my left kidney is very small right kidney is also failing fast. i also have other illnesses,could u please give me any info.tommy
tommy brady
blyth, northumerland UK - Wednesday, 07 May 2008 at 20:45:51 (BST)

Hi! been on heamodyalsis over two years,it has its benefits, its the only place my wife cant nag me. Remain strong, miracles do happen, i believe in hope. please encourage your freinds and family about organ donation, its our hope, Gift Of Life. Take Care.
gurvinder
southall, england UK - Thursday, 01 May 2008 at 17:42:14 (BST)

Hi
I donateda kidney to allow my father to receive one on 23 October 2007. The lady who received mine is back on dialysis after rejection and my father who received a kidney from her husband is doing really well. I am gutted for the recipient of my kidney but also elated that my father is doing so well. Feel a bit guilty for being elated about my father but everyone knew the risks involved. My health was back to normal after a few weeks. No regrets.

Suzanne Wills
Cornwall UK - Sunday, 20 April 2008 at 18:59:08 (BST)

Hi, im a woman of 42, i found out i had reflux nephropathy when i was 18. I was recently told that my kidney function is reduced to 16% but has been stable for the last 7 years. This was a shock for me because i thought my my kidney function it was 45%, this i was told after tests done 10 years before. I even asked the doctor to check records to make sure he was talking about me! Now i am just waiting for that day to be told i have to start Dialysis. Which he did mention.. I do hope that day dont come for a few more years yet.
margaret
cardiff UK - Friday, 18 April 2008 at 18:14:11 (BST)

i would like to thank the nottingham city hospital for giving my husband the gift of life because this year he will have had his transplanted kidney for 21 years and fingers crossed more to come xx
fiona
derbyshire UK - Thursday, 17 April 2008 at 21:39:43 (BST)

Hi all,
How are you today?
Well let me tell you a liitle about myself. Im 28 years old and iv had kidney problems since i was born. luckly for me, my original kidneys lasted until i was nine years old. After that the doctors gave my parents the bad news that their son would soon need dialysis to keep me alive. I was put immediatly on the Transplant list as my kidney was only working 20%, but luckily, within three months on being on the list, i recieved a kidney which lasted me 12 years!! In 2000 my transplanted kidney rejected and i was temperally put on Heamodialysis whilst i was getting trained for CAPD. CAPD/CCPD Lasted 5 years in total, and when they failed i was put back on HD.
It's not been an easy ride, but i'v managed to cope even when times in my life have been hard. The great deal of support that i have recieved from both, family and medical staff at Leicester General Hospital, have been very much apprieciated. I Sometimes think Thank you's are never enough compliment to pay for these supportive people!! They really are genuine, caring and generous lot.
Anyway i'm back on the waiting list now and so far i'v been on it for 8years. I hope i do get a kidney so i can start to live a normal life, until then, HD 3x week is my "Normal life"
Jatin
Leicester, UK - Tuesday, 01 April 2008 at 15:04:01 (BST)

I would just like to say if it wasnt for this site and the amazing people on it i dont know were i would be today.This site is a god send in my eyes and the people on it are all angels and i admire everyone one of them x big hugs and thanks x x
kim
south shields, tyne and wear UK - Monday, 31 March 2008 at 23:37:30 (BST)

THIS IS TO EVERYONE ON DIALYSIS, WAITING FOR A TRANSPLANT OR RECENTLY HAD A TRANSPLANT I SNEDING A MASSIVE HELLO TO EVRYONE ONE YOU. i HAD A KIDNEY AND TRANSPLANT IN NOVEMBER 2006 AFTER BEEN A DIABETIC FOR 29 YEARS AND MY KIDNEYS FAILING IN 1999 NEVER GIVE UP HOPE, STAY POSITIVE AND KEEP BELIEVING AS THERE IS ALWAYS LIGHTA T THE NED OF THE TUNNEL. MY MOTTO IS "POSTIVE EMNTAL ATTITUDE" TAKE CARE EVERYONE

BEST WISHES
JOANNE ARMSTRONG X
MISS JOANNE KELLY ARMSTRONG
SUNDERLAND, UK - Sunday, 23 March 2008 at 21:43:38 (GMT)

hi everyone, this is my first time on this website. i am 19 years old, and have been on dialysis for about a year now, iam only just getting used toit though, its very hard to adapt, im still working and hve friends who all support me and who have been very helpful during this past year, unfortunately i missed out on getting a kidney last november, wasnt to pleased about that though, but im sure another will come along shortly.
Stephen Harrison
Blackburn, Lancashire UK - Wednesday, 19 March 2008 at 16:09:11 (GMT)

Happy world kidney day everyone !x
Thomas Hecht
Nottingham UK - Thursday, 13 March 2008 at 15:57:10 (GMT)

Hi All, I've been on dialysis for about 12 years with one transplant in between which lasted 3 years. I've been doing home hemodialysis for about 1 1/2 years now and am doing very well at present. I have a normal life outside of dialysis. Any correspondence welcome. This site is great:)
Oonagh
Northern Ireland, UK - Thursday, 06 March 2008 at 11:56:08 (GMT)

I had a renal transplant 23 years ago after 4 and half years on dialysis. I am now 50 years old and still going strong. I run a bar am still able to have a drink daily despite being told not to drink. Live each day as your last.
mitch
essex UK - Monday, 03 March 2008 at 11:35:01 (GMT)

lupus patient with esrf just been told that need dialysis and transplant. unsure what to expect, am afraid.
mandy
UK - Friday, 22 February 2008 at 10:23:44 (GMT)

Thanks for your kind words, still can't believe its finally nearly here!!
Take care Mel x
Mel
Essex UK - Monday, 11 February 2008 at 19:01:24 (GMT)

good luck mel will be thinking of you!keep us up todate how you progress x
sheena
leicester, leicestershire UK - Monday, 11 February 2008 at 14:23:36 (GMT)

Mel Best Wishes and GOOD LUCK!! Our thoughts are with you.
michelle
biddulph , staffordshire UK - Monday, 11 February 2008 at 14:11:24 (GMT)

Just received THE PHONE CALL this week - booked for transplant 26th Feb...can't believe its really going to happen:) Take care everyone
Mel
Essex UK - Saturday, 09 February 2008 at 12:02:29 (GMT)

On CAPD for 18 months then had living related transplant from my mum - now failing after 13 years. Finding it hard to cope with, if you are in the same situation or just want as chat email me for a chat.
liz
Suffolk UK - Thursday, 07 February 2008 at 00:01:17 (GMT)

I have been on dialysis since January 2006, firstly and PD then in Oct 2006 switch to HD. I work full-time and dialyse at Broad Green on Twilights. I have found this site to be extremely useful and appreciate all the guidance and advice I have retrieved from it. Thank You!
Sue Loftus
Liverpool, Merseyside UK - Tuesday, 05 February 2008 at 16:12:33 (GMT)

Thanks for the detailed information provided - I found it very helpful in my quest to improve my diet and maintain good health whilst dialysing.
Sue Loftus
Liverpool, Merseyside UK - Tuesday, 05 February 2008 at 16:07:14 (GMT)

I have been on dialysis for nearly 12 years now. i started on PD, but am now on Haemo. I am a twilight patient, because it means i can still work and keep my own business going. I have up and down days, but you do find a way to manage your own way. If anyone wants views on my experiences, then please do not hesitate to contact me. Am a 34y/o male.
Nicholas Macartney
Oxford, oxfordshire UK - Saturday, 02 February 2008 at 16:07:18 (GMT)

I have had renal failure for 15 years, and am now having to have a fistula fitted to start dialysis. I have been dreading this moment since starting with kidney failure, but having seen the messages on this site it has given me the spirit to cope.
mr lee parker
worksop, nottinghamshire UK - Tuesday, 29 January 2008 at 09:18:27 (GMT)

this site is amazing.. 3rd year student presently on placement at a renal unit. this site has helped me put the theory behind, and given me a better understanding about everything I have seen. thank you and good luck and best wishes to you all.
lisa
UK - Sunday, 27 January 2008 at 19:47:35 (GMT)

Hi i'm Amelia aged 8yrs born with familial juvenille
hyperuricaemic nephropathy.Been told very rare, doctors don't no anyone else with same condition. Is there anyone out there with this condition.Off skool at the moment feeling sick.Been for ultrasound scan I now have developed
cysts.Awaiting to see doctors.Please anyone out there please
e-mail me
Thanks!!

Amelia Tubb
Stoke-On-Trent , Staffordshire UK - Friday, 25 January 2008 at 14:35:05 (GMT)

I am a 2nd yr adult nursing student and have been doing an assignment on adult PKD. I have found your website extremely informative. Thank you so much.
Carol Cook
Allhallows, Kent UK - Wednesday, 16 January 2008 at 15:16:36 (GMT)

Dear all,
having recently been diagnosed with CKD this site has been of great help to me.
Thank you T.Cray
Terence Cray
Clacton on Sea, Essex UK - Wednesday, 16 January 2008 at 12:31:56 (GMT)

I lives in yhe northern part of sweden (as you can see, my english is homemade).
Have been a kidney patient for 50 yer this year in June.
Transplantation twise, totaly 35 year, both from my brothers. It�s so interesting to read about the situation in UK, I realy like to bee there, and hope to back soon.
My Best Regards to all kidney patient in UK from winter and snow high up in the north.

Harry Strandberg
Umea, Sweden UK - Monday, 14 January 2008 at 12:40:09 (GMT)

Hi,I have been a home haemodialysis patient for 29years, I have certainly seen a lot of changes. Does anybody recall building the Kiil board dialyser? Despite the unfortunate effects of long term dialysis I enjoy a happy and fulfilling life. I have recently moved to Cheshire having lived in Wigan for 26yrs where we brought up our two children. I continued to work full time whilst on dialysis but after 20 years finally had to admit defeat and I took early retirement. I would be happy to correspond with anybody in a similar position
Peter Maher
Northwich, Cheshire UK - Sunday, 06 January 2008 at 20:23:58 (GMT)

Happy New Year to you all.
Ross Young
Balerno, Edinburgh UK - Wednesday, 02 January 2008 at 09:24:33 (GMT)

The National Kidney Federation is registered in England and Wales as a Company limited by guarantee (Company No 5272349) and awarded charitable status (Charity Number 1106735). Give as You Earn contributions No. CAF GY511. Registered Office:- The Point Coach Road Shireoaks Worksop Notts S81 8BW	Tel: Fax: Helpline: E-mail:	(01909) 544999 (01909) 481723 (0845) 601 02 09

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Last updated: 9 July 2008

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