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Third
patient views
Please note, this page is a summary of the full conference speech (click here for the full transcript).
Simon Lloyd
Four years ago when Simon got a transplant, the only information he received about skin care was just to keep covered in the sun.
When he went to the transplant games, he was given a short-sleeved T shirt.
"Zero protection for your arms, and I bet you can see through it if you look," he said.
But he did get a cap, which protected his ears and nose.
"Nobody, but nobody wore these things until the Sunday, when we had the athletics in Saffron Lane and it was hot. It was a beautiful day and the sun was out and there we all were in our T shirts and suddenly - Wyeth had a surplus of these caps - they all disappeared," he said.
At both of the games he had taken part in, he was one of the few people who wore a hat at all, and certainly one of the few who had worn a wide-brimmed hat.
"Our transplant games are appalling!" he said.
"We totally ignore the advice we are given about skin cancer."
He thought that each transplant patient should have an all-over skin check once a year.
"We would like to see at our clinics somebody, maybe a highly trained nurse, who can identify these things and who can get us to the appropriate person."
Please note, this page is a summary of the full conference speech (click here for the full transcript).
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